Letting Your Loved One 
Fly Free

As a caregiver, you’re likely accustomed to a never-ending to-do list of constant care needs for your loved one with cystic fibrosis (CF). But then, one day, you may realize they’ve grown up to become an independent, self-sufficient adult right before your eyes! How did this happen? And are you ready for it?

Temporary toodle-oos to your tots and teens

Even if it’s only for a few weeks, days, or hours, it may be nerve-wracking to send your loved one off on their own for the very first time. Whether they are attending camp, starting a new job, or taking a trip with friends, it’s important to let them take steps to empower their independence. Take comfort in knowing you’ve prepared them well for their time away.

Embracing change

Over the years, your caregiving tasks may have become second nature, and it can be hard to let go of old habits. The transition to an empty nest can be challenging, especially for parents whose child has been living with a chronic illness.

But don’t worry. Being a caregiver will always be a part of your identity. Your loved one leaving home doesn’t change that. You’ve prepared them well, and now it’s time for you to focus on caring for someone else—yourself.

I’ve learned through the years that it's so important to take care of myself, so that I'm stronger, both physically and mentally to be able to be that better caregiver for him.”

–Jen, CF Caregiver

Make the most of your free time as an empty-nester

Here are some ways to keep your mind and body occupied once your caregiver duties are no longer at the center of your life:

Master a new hobby

The options are endless. You could start learning that instrument you’ve always wanted to play, or keep your hands busy by taking up crochet, knitting, or embroidery. Maybe you’ve always had a flair for creative baking and want to hone your abilities. Hiking could be a great way to clear your mind and reconnect with nature. Feeling extra nostalgic? Channel your organizational skills and create beautiful scrapbooks out of your old photos.

Get involved in the community

Joining a support group can help you connect with others now that your caregiver duties are taking a back seat. Consider exploring local organizations or clubs that catch your interest—it can be reassuring to have a supportive network nearby. There are also many ways to stay engaged and advocate for causes you care about. You might share your experiences on online forums, attend conferences, volunteer at charity events, or even be a guest on a CF podcast like Uncommon Lungs

Cross off a bucket-list destination

Take a trip to a place you never thought you’d be able to go. It doesn’t need to be expensive or far from home. Maybe it’s a weekend getaway with friends to a city in the next state over or a solo trip overseas that you book when you find an irresistible flight deal you can’t pass up! Choose your own adventure!

Rekindle an old friendship

Having companionship when your child leaves home is key. If you’re feeling lonely, this may be a good time to reconnect with an old friend and get caught up on each other’s lives.

Keep in touch

Remember, your loved one is just a phone call, text, video chat, or visit away!

“It was really important from early on for me to make sure that Michael understood what cystic fibrosis was. Teaching your children young to make it second nature is really important to give them the life skills they need as adults to manage this illness.”

-Jen, CF Caregiver

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